Do You or a Loved One Have Barth Syndrome? Dr. John Lynn Jefferies of Cincinnati Children’s Research Foundation is doing a research study concerning the assessment of quality of life, anxiety, and depression in Barth syndrome. Please consider the attached information and contact Dr. Jefferies directly if you decide to help. Learn more...
We collectively and tenaciously work toward saving and improving the lives of those impacted by Barth syndrome, an ultra-rare, life-threatening genetic disorder. We aim for a world where everyone in our community can thrive and live the life they choose.
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This is our impact.
We exist to raise awareness for our cause and bring change to the lives of those we serve in our community. With your help we can make a difference. Learn more and get involved.
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People Helped1,000
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Barth Syndrome Foundation Family Services is a caring community offering vital information and credible resources.
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Barth Syndrome Foundation is the worldwide hub of medical knowledge about Barth syndrome and encourages its progress.
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Barth Syndrome Foundation is a global facilitator for advancing understanding of and developing treatments for Barth syndrome.
